Friday, December 5, 2008

Kourt update


I just wanted to let everyone know that the date has been set in place to get the first step of Kourtneys cleft repairs started. The doctors have decided on January 21. They plan on fixing her lip, pining in a prostitice hard palate, stitching closed the soft palate, and also putting tubes in her ears. The hope is that this will help with ear infections, and also the cosmetic aspect of it all. I am very excited for her, I can't wait until she can have all the tape off her face. They only stipulation is that she can't have any ear infections before then. I don't know how I will be able to keep her not sick for 2 months, but I am hopeful. They, at first, where planning on doing it on Dec.31 but after checking with all of the doctors that must participate the soonest day they can all do it is the end of Jan. Needless to say I was pretty upset about that, but I am glad they have a day and are willing to do it.

Also, about two weeks ago we went to see Kourtneys neurologist. They decided that it was in her best interest to change her seizure meds. Well one of them. They started her on the one (Topamax) that day to let it her system adjust to it. They need took her off the other med. on Tuesday (Keppra). Her body really did not like the Keppra being gone and on Wed. she had many seizures. Her ped. Doc told me to put her back on her normal Keppra dose and then Thurs. morning she called neurology to discuss what to do. So they decided to keep her on the Keppra for a while longer, and after the Topamax dose is stronger they will more slowly take her off the Keppra. She is much better now.

1 comment:

Heidi said...

Geoff told me the other day that she is going to get the surgery, I'm so happy for her! It will be so good to get that all fixed up, she is so cute, and I miss seeing you guys. Hopefully life will get back to normal soon, and we can see you soon!