Kadrey and Jaxon

I was concerned about how the older two kids would respond to Kourtney beening home but they have both handled it very well. They both seem glad she is here. They argue about who love her more and they love to play with her.

So we had to go to the dentist last week and Jaxon has 4 cavities and Kadrey has to get braces. She is very excited to get them on, hopefully she will always feel that way because this is going to be a long process. Jaxon seems to think that if he takes really good care of his teeth that he wont have to go get the cavities filled - poor guy.

6 weeks

It seemed like we where never going to get Kourtney home. She was in the hospital for 8 weeks 1 day. They finally decided that she could come home and she has been here for 6 weeks. Everyday seemed to drag while she was in the hospital, but all the days seemed to blend now that she is home (it really doesn't not feel like 6 weeks). This morning when Dan and the kids got up Dan discovered that Kourtney's G-tube had come loose and leaked everywhere. So, he had to refill the "balloon" anchor that holds it in place. He did a very good job and is pleased with himself (I am pleased to because I don't know if i can fix it so I'm glad someone can.)

Thank you

I just wanted to thank everyone who helped or participated in the fund raiser that Macey's held for Kourtney. I want to let everyone know that with your love and generosity they were able to raise over $3300.00. Thank you everyone. I know that life gets crazy for everyone, thank you for remembering about us and for caring and praying for us. Once again Thank you.

Fund Raiser

I just wanted to remind everyone that Macey's is having a fund raiser for Kourtney tomorrow. They are having a BBQ-for three dollars you get a hot dog, chips, drink, and a cookie. So if you can, please stop by. Also, I just wanted to thank everybody for all you do. I am grateful for your prayers and concern, and also for caring. I am so thankful. I know I dont always show it but I am very thankful for all of you.

Parent Teacher Conference

Today I went to Kadreys parent teacher conference. She is doing really well in school, she is learning everything she needs to. The only problem she has is talking too much. The teacher said that it doesn't matter where she gets moved she always finds someone to talk to. I figure that as long as she is doing her work and learning that being social is not the worst thing. Its better then being so shy she can't play or enjoy herself (like the beginning of last year).

Kadrey and Jaxon both got to pick out a book from "The Book Fair" today - they were so excited. It is so amazing what a little bribe can do (and i figure a book is an okay bribe) They managed to get their whole room clean and i only help a little:)

Hospital Trip

Well, I guess its called round two. Kourtney ended up back in the hospital over the weekend. She did come home on Sunday and I am glad that this time it was only two days (and not two months). She ended up with a respiratory infection and was having a very hard time breathing and that was causing her heart to work a lot harder, so the doctor decided she needed to be admitted (even after my small breakdown). She is now feeling better and is on the road of recovering from this.

My work is having a fund raiser for Kourtney so there are big posters of her in the store. Jaxon didnt know about the pictures and was shocked and almost upset that his sister had pictures all over, he then had to show Kadrey all of the pictures and they ended up beening pretty excited. I am happy that the two older kids are handling having a baby sister and all of her challanges so well.

update

I just thought I would quickly tell you about Kourtneys appointments today. The ped orthodontist said her bones in her palate area are moving nicely, he also has started the lip tapping process (one day she wont have tons of stuff tapped to her face.) We were told that by taping the lip the scar wont be as big and the wound will heal faster. Her G-tube had granulated tissue (beef looking growth) which they burned off today. She also had her blood drown and her med levels are still to low so we had to up her dose per day again and she has another cold.

Kourtney

Kourtney has been home for almost three weeks now, she is eleven weeks old-the time sure does fly. It has been a wonderful challange to have her here, even after learning all of the medical things we needed to know I don't think anything could have prepared us for actually having her home. She has been to the doctor 5 times and also has a home nurse that comes once a week. She has already had a "cold" (type thing) and is finally over it, however we were warned that with her palate and syndrome she will most likely get sick a lot. Poor girl has to have her blood drown once a week (to check her med. levels and also her liver), she has to go to the orthodontist once everyother week (to check her "nam" and make needed adjustments). She is handleing everything like a trooper and I am sure she is just as grateful as we are that she is with us. Tomorrow she has two docotor appt. poor little thing - she usually only leaves the house to go to the doctors- she has gone on two walks and loves being in the car.

Halloween

We do seem to always be running around trying to get everyday things done-however we did remember friday was Halloween, got the kiddies some costumes, and took them trick-or-treating. It was really a lot of fun. Kadrey was Hannah Montana, Jaxon was spiderman (thanks to my friend Kim), and Kourtney was a cute festive baby. We were only out for about an hour but ended up with enough candy to last us a year. The kids had fun dressing up and hanging out with their cousins. Kourtney had to stay in the stroller because we were slightly worried she would get too cold, so she did not get to be in the picture. About half way through our trick-or-treating evening Kadrey ended up ditching her wig because it kept slipping off her head (I could not get her to stop running, she was too excited). Jaxon also ended up taking off his spiderman mask because he could not see well. But it was a lot of fun. Kadrey is in the middle with her coat on and Jax is the first spiderman (holding the black bag).